Sunday, February 27, 2011
I first learned about this little girl, only eight days younger than my youngest, reading an article online about her mystery condition causing her to have such difficulty with growing. I felt instantly connected to Maggie and her family for so many reasons, and the "it might be mito" thought crossed my mind. I wondered if they were working with the same doctors we were, getting the same non-answers we were. And they were. It took about two years for Maggie Agnew to finally see a doctor out of state who specializes in Mitochondrial Disease to perform a muscle biopsy that would show Maggie had Mitochondrial Disease. By this time, the disease had progressed significantly. Only seven and half months after that diagnosis, Maggie Agnew has died. Please keep the Agnew family in your thoughts and prayers at this difficult time, and for the difficult days, weeks, months (and even years) ahead as they go through grief's journey.